Tuesday, April 29, 2008

Drama llamas...

So... The newest installment is that mom now has a blood clot on her forearm at the cite of where they administered chemo last Thurs. Her Onc. sent us home with an order to put heat on it for 20 min. then off for 20 min. in efforts to break it up. We go back there today for another injection of Nupagen (to build her white cell count) & he'll check it then.

In other news, Dad's doc thinks he might have kidney stones, so he'll go for an x-ray this week...

Hadi seems better. Not sure what her problems were/are... But I believe we're on the road to recovery...

I'm at the chiropractor in this groovy massage chair. Its a mini vacation from clots, stones and hurting pups...

Once again goes to show you that a day without drama is a day without the Lewis family...

Sunday, April 27, 2008

what else...?

So... Both Dad and Hadi (my four legged daughter) were quite sluggish this weekend. Dad was in bed at 7 tonight but said, and I quote "I feel fine." As I pushed, as all daughters are expected to do, he finally caved that his kidney has really been bothering him - so much so, that he had scheduled an appt. with the dr. for tomorrow. But, and again I quote, "i feel fine." Men!

So I notice that Hadi had been sporting an "I DON'T feel fine" look & wouldn't lay still at bedtime. Well, come to find out, for one thing she hasn't eaten in several days. (she has one of those automatic food dispensers so please don't call the humane society telling them I'm neglecting her.)

I noticed that she wouldn't bend down to pick up a treat - which is HIGHLY unusual - and watched as it seemed she either couldn't see it or was suddenly afraid of it. Dad picked it up & handed it to her & she ate fine. Then I told her to get some water & she did the same thing. I took a handful of her food in my hand & she gobbled it like she was starving to death, but she would only take it from my hand. Not the bowl. Not the floor. And this is EXTREMELY unusual behavior.

Dad tossed a cookie at her and she almost caught it (almost ruling out that this is a vision problem) but then yelped and favored her front right leg when she landed. So maybe it hurts to stoop down to her food & water dishes? Ok. Now we're getting somewhere. Maybe. Dang. Why didn't I teach her to talk?

So the poor baby finally has her belly full & I gave her an aspirin covertly wrapped in a slick butter coating...

Tomorrow i'll hit my ol' pal, Dr. Jason Wheeler, (the Wonder Vet) for some of his knowledge - but for now... hopefully... prayerfully... we can sleep...

Friday, April 25, 2008

I'm on medication...

Ok, my neurosurgeon (the AMAZING Dr. Dusseau) put me on a pain medication called neurontin. It is not a narcotic which is good. It makes me sleepy, which is sometimes not-so-good. I have figured out that I have to take it 5 hours before bedtime. I also need to be near my bed at about the 5 hours & 15 minutes mark!

Around that mark tonight, I somehow managed to intangle some of my hair into my toothpaste cap. The best part (for you visual thinkers) was that I didn't realise it until I went to set the tube down...and it remained suspended... Floating through the air like a trapeeze.

Have you ANY idea how disturbing a levitating tube of Tom's Spearmint gel while under the influence of a sleep inducing med can be?

Nite

Thursday, April 24, 2008

I'm a mess... (Psalm 40)

But all that are hunting for You -
oh, let them sing & be happy.
Let those who know what you're all about
tell the world You're great & not quitting.
And me? I'm a mess. I'm nothing & have nothing:
make something of me.
You can do it; You've got what it takes -
but God, don't put it off.

gotta love dem foreigners...

I have this thing where I think its HILARIOUS when foreigners mis-quote our euphemisms. I mean, I commend them for trying, but I think it is so funny! Today, we met Mom's Hospice Dr. For the first time. He is Croatian with a VERY heavy accent - so heavy that mom doesn't really understand him a lot of the time.

Earlier, he was having a serious conversation with mom about the advantages/disadvantages of chemo & radiation treatments and her quality of life. He said "it's between a hard & a rock place." I wanted to laugh SO badly - but instead, I just wrote it down.

Throughout the conversation, he kept saying, "We'll play by da ear." And then, speaking of his nurse, he told mom that "she keeps me on your toes."

I think I might be getting waaay too much of a kick out of this!!! But figured if I thought it was funny, you just might, too!

Monday, April 21, 2008

Great news all around...

Well... Took mom for her blood test this am & her levels are all back up to normal! Praise the Lord! that means she can have her chemo treatment on Thurs. as scheduled. Thanks for praying!

My buddy Tricia (double lung transplant recipient) will be released from the hospital tomorrow! This is starting out to be a GREAT week!

Sunday, April 20, 2008

The Shack...

I'm reading an interesting book that I would highly recommend called The Shack by William P. Young.

I GUARANTEE you it will change the way you envision the Trinity... and the way you view life in general. Check it out then let me know your thoughts!

Thursday, April 17, 2008

Blood, that quirky substance...

If you remember, mom was having trouble a few weeks ago keeping her red blood count up. Well, I'm happy to announce that, as of this morning, it is at 4.40! (normal range is between 4.20 & 5.40) So thanks to Procrit shots, iron supplements & PRAYER, she's doing much better on that scale.

We now have a new problem. As of this mornings blood work, her white blood count is 1.5 (normal range is between 4.20 &10.0) As you can see, this level is DANGEROUSLY low. They gave her a shot of Nupagen & will give her another one tomorrow in attempts to raise her WBC. This med is known to cause bone pain as it forces the bones to produce more white cells. Please pray that she will remain pain free!

This also means that mom is "quarantined" for the time being. She is at HIGH risk for infection right now, so a simple cold could be life threatening. Please also pray we can keep her healthy.

She was really shocked at the report because she feels so good. She did get a bit discouraged on the way out to the car, and said something like "why can't anything be easy?" I reminded her that she was walking out of that office & that there were several patients inside that required a wheelchair for any mobility whatsoever... Her response, "I truly have been blessed."

She's just tired. And I fully understand that...

Tuesday, April 15, 2008

Live from Lee Memorial...

Well, believe it or not, I'm sitting in the room with mom while she's having a bone scan... I got to watch her skeleton (front & back) appear on the magic screen. Now, I have no earthly idea what any of it meant, but it was still cool!

The tech said that at her first glance over everything, it looks good... No visable signs of cancer to speak of, but we will have to wait for the final results...

Keep on prayin', troop!

Monday, April 7, 2008

This phone is amazing!

Wow - so the test worked & I can now email my blog directly from my phone. Purty cool, huh?

So, here are the updates:

Mom starts radiation tomorrow at 2pm-ish, so please keep her in your prayers. This will be the first of 10 "ZAPS!" to the area on her right side near the waistline.

She will have chemo on Thurs. & then I think the doc will wait to see how she does before planning the next dose.

Dad & I met with the neurosurgeon this am to discuss surgical options for my Chiari Malformation. He is sending me for an MRI tomorrow - and said that he believes I would be a good surgical candidate. If I do opt for surgery, it will be quite a while down the road as I have other more pressing matters at hand with mom. It'll all work out in the wash!

While we were there, we also consulted him about Dad's potential surgery to widen his spinal column. We will get his primary to order a new MRI & get the results to the neurosurgeon to see if he should have the surgery now or not.

Too many doctors, not enough sleep! Hitting the bed early tonight... more to you soon...

Blessings-
a

p.s. Only bad thing about this is I don't have spell check - things *could* get interesting!!

Test blog...

Well, this is a only a test... I'm trying out a new setting that allows me to post to the blog directly from my cell phone... If it works, it will help me keep the site up todate...

Let's see how it goes....

Thursday, April 3, 2008

P.S.

Make sure you check out the EXCITING things going on with Nate & Tricia at http://cfhusband.blogspot.com/

here we go again...

well, poor Weeze is about to go on another wild adventure... She will start chemo and radiation next week to treat the growing tumors in her body. Unfortunately, we found another one this week and are praying that radiation will get rid of it in 10 treatments.

This week we signed mom up with Hope Hospice. If you are like I was before this week, and unfamiliar with all of the services they provide, please click on the above link and do some nosing around. They will pay for ALL of mom's meds (related to the cancer) and provide amazing services like housekeeping (can I hear an AMEN!?!) and do her laundry and even go grocery shopping for her! They even have an art therapist that will come out & teach her some art techniques and such.

Dad had a TERRIBLE bout of the flu last weekend, but is feeling better now.

I go to the neurosurgeon on Monday to see if I might be a surgical candidate to help alleviate some of the headaches caused by the chiari malformation. I will do my best to keep you updated as we travel on...

Many blessings to you all...
Anita